I was recently asked for examples of patient and community engagement organizations or groups at cancer centers, and compiled this list with the help of the informed members of the Advocate Collaborative (ACE). Turns out that this reference list has been very popular and seems to have met a need in the broader cancer community, particularly among those interested in building their own patient advocacy or community engagement programs so I wanted to make this list available more broadly.  Download it as a .pdf here.  It is also available on google docs here.  

This list is meant to be a community resource and it may not be complete.  If something is missing let me know and I will try to add it.

Examples of Patient and Community Engagement Organizations at Cancer Research Centers

Listed in alphabetical order by Institution

The UCSF Community Engagement Center offers Community Engagement Toolkits for community-engaged research, patient advisory boards, partnerships, service learning, etc. 

 *UCSF Breast Science Advocacy Core

Cornell Community Cancer Partnership, Cornell University. 

*Dana Farber/Harvard Cancer Center Breast Cancer Advocate Program

*Georgetown Breast Cancer Advocates

 *University of Illinois at Chicago Cancer Center  

*Cancer Research Advocacy Group (Cancer Center at Illinois Urbana-Champaign)

*Johns Hopkins Breast Cancer Research Advocates

*PIVOT – Patient and Investigator Voices Organizing Together (U of Kansas Cancer Center)

*University of North Carolina  Lineberger Comprehensive Cancer Center

 Community Advisory Board – UNC Lineberger and The UNC Breast SPORE Advocates

*Oregon Health and Science University Knight Cancer Center Research Advocates

*Breast Cancer Research Advocacy Network BCRAN (University of Pittsburgh Hillman Cancer Center)

 Rutgers Cancer Institute of New Jersey Community Cancer Action Board

University of South Carolina Patient Engagement Studio

*Vanderbilt-Ingram Cancer Center

 Community-Campus Partnerships for Health used to be at U of Washington (Seattle), now is a separate membership organization.

*Breast Cancer Research Advocacy Network (University of Wisconsin)

* Referenced advocacy programs are courtesy of the terrific resource list included on the Cornell Community Cancer Partnership website.  

Compiled with the help of the wonderful members of the Advocate Collaborative (ACE) in February 2022.  This list is meant to serve as a general community resource, and may not be complete.  If you have additions or changes contact l pate seattle @ yahoo (dot) com or comment on this post.